Medically Complex Children and Youth Guidebook


Confidentiality

All information about the participant/family (verbal, electronic, or in written form) is confidential. The DHSS Notice of Privacy Policies is provided to the participant, parent(s), and/or responsible party(ies) upon enrollment and annually thereafter. The Acknowledgement form is required to be signed by the participant, parent(s), and/or responsible party(ies) upon enrollment and annually thereafter to document receipt of the privacy policy. 

All access to health/medical information should be requested, released, or viewed using a written and signed Health Insurance Portability and Accountability (HIPAA) document considered by DHSS to be compliant with current regulatory guidance. The SHCN current compliance document is the DHSS Authorization for Disclosure of Consumer Medical/Health Information form.

Obtaining from or Releasing Information to Non-Participants and/or Parent(s)/Responsible Party(ies)

  • In order to request and/or share records of participants, a current original signed DHSS Authorization for Disclosure of Consumer Medical/Health Information form must be obtained and kept in the hard file. These forms may be completed at the annual home visit but are not required if Protected Heath Information (PHI) is not being sought or shared.

Releasing Participant Records to Participants, Parent(s), and/or Responsible Party(ies)

  • Requests for participant records from the participant, parent(s), and/or responsible party(ies), must be submitted in writing and given to the RC. The RC then notifies the PM, Associate Bureau Chief, and Bureau Chief of this request. The PM will coordinate the release of information with the RC and SC.