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Laws, Regulations & Policies

Missouri’s newborn screening program is governed by specific state laws and regulations designed to ensure the health and safety of every infant. This page provides access to the statutes regarding metabolic and genetic testing requirements, confidentiality protocols, and the department's sample storage policies. These resources serve as a guide for healthcare providers and families to understand the legal framework that supports early detection and intervention for genetic diseases.

Laws

191.317
Confidentiality of all tests and personal information--exceptions--retention of specimens, procedure

191.331
Infants to be tested for metabolic and genetic diseases--reports --exceptions--refusal to test--fee for screening test, department may impose by rule, use of fees--formula provided by department, when.

191.332
Supplemental newborn screening requirements.

Regulations

19CSR 25-36.010

Policies

Missouri Newborn Screening Sample Storage and Release Policy