The Missouri Sickle Cell Anemia Program (MSCAP) provides information to the public and health professionals about sickle cell anemia and sickle cell trait, and promotes and provides screening, referral, counseling and follow-up services for Missouri citizens at risk for sickle cell disease.
Screening
All infants born in the state are screened for sickle cell conditions. The screening is conducted in conjunction with other newborn screening tests. Newborn screening identifies affected infants and enables early diagnosis and treatment. All individuals tested and identified with sickle cell trait or other carrier conditions receive notification of their test results.
Trait Notification
All parents of infants identified through screening with sickle cell trait or other carrier conditions receive notification of the test results. Educational information regarding the trait condition and the inheritance is provided to all parents and families.
Follow-up
All infants identified through the Newborn Screening Program with test results indicating sickle cell disease are followed to ensure that confirmatory testing is done and that all confirmed cases are enrolled in a system of ongoing medical care.
Hemoglobinopathy (Sickle Cell) Resource Centers
Adult and pediatric resource centers are located throughout the state to ensure the availability of comprehensive medical care for individuals diagnosed with sickle cell disease. Each resource center is in a hospital that provides inpatient, outpatient and emergency care.
Adult Sickle Cell Disease Treatment Program
The Adult Sickle Cell Disease Treatment Program, as a payor of last resort, provides limited financial assistance to Missouri residents who have been diagnosed with sickle cell disease. Services are provided to individuals 21 years of age and over who meet the eligibility criteria of the program. To apply for services, please contact the Adult Sickle Cell Disease Treatment Program at (573) 751-6266.
The participant must:
- Be a Missouri resident
- Be 21 years of age or over
- Have a documented medical diagnosis of sickle cell disease
- Apply for MO HealthNet (Medicaid benefits and complete the application process to obtain or maintain program eligibility. Please find the listing at the Missouri Department of Social Services, Family Support Division county office locations.
Meet financial eligibility criteria (at or below 185% of the Federal Poverty Income Guidelines
Financial Eligibility Guidelines
Enrollment Dates: January 1, 2026 - December 31, 2026 (or until the Federal Poverty Guidelines are updated)
For each additional family member add $10,508.00
FAMILY SIZE
ANNUAL INCOME
1
$29,526.00
2
$40,034.00
3
$50,542.00
4
$61,050.00
5
$71,558.50
6
$82,066.00
7
$92,574.00
8
$103,082.00
- Financial eligibility guidelines are based on the U.S. Department of Health and Human Services (HHS) Poverty Income Guidelines. Reference: http://aspe.hhs.gov/poverty-guidelines
Advisory Committee
The Sickle Cell Standing Committee is a sub-committee of the Missouri Genetic Advisory Committee. The committee meets at least annually to review and evaluate programmatic activities, examine existing services and resources, and make recommendations regarding services and policies to address the needs of individuals with sickle cell disease.