Frequently Asked Questions About Registry Security

Introduction | FAQ's | Myths & Misconceptions | Registry Information | FAQ's About Registry Security

How can I be sure my information is kept confidential?
How do you ensure that someone does not sign up another person without his or her knowledge or consent?
How do I access or change my information?
What happens after I log off?
What happens if I forget to log off?
What does the Department of Health and Senior Services do with the information?
Does anyone else use my information?

How can I be sure my information is kept confidential?
Answer: Your privacy is very important to us, as is safeguarding your personal information. As a state-authorized public service, the Missouri Department of Health and Senior Services adheres to the strictest and most up-to-date guidelines to keep all personal information confidential. The secure web site uses 128 bit encryption to keep your information confidential during your use of this system.

The registry database is kept in a secure location under physical, electronic and procedural controls that ensure the information is only accessed when authorized.

It is absolutely vital that the individual registrant is identified with 100% certainty should they ever be in a position to be an actual organ or tissue donor. The Department never wants to have a donor recovery organization confuse a potential donor who is not registered with someone who is. Therefore each time you want to modify your record, you will be required to revalidate who you are with personal information.

The Department has taken every precaution to protect your information from identity theft.

How do you ensure that someone does not sign up another person without his or her knowledge or consent?
Answer: More than 40 state donor registries are currently in operation. To date there has been no reported problems with persons registering people other than themselves. You can check your record via a secure website where you must revalidate personal information before entering your record. The registry has other private security measures to help assure the safety of your information as well. If you have concerns, please contact the registry.


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How do I access or change my information?
Answer: To change your donor information, click on Update My Profile and sign in. You will need to revalidate personal information in order to access your record.

What happens after I log off?
Answer: When you log off Missouri’s Organ and Tissue Donor Registry, the system automatically clears any temporary cookies. A temporary cookie (special file) is stored on your system during your online session with the registry. Although these measures offer additional protection against unauthorized access to confidential records, it is recommended that you also close your web browser once you log off.


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What happens if I forget to log off?
Answer: Missouri’s Organ and Tissue Donor Registry will automatically log you off after 5 minutes of inactivity.

What does the Department of Health and Senior Services do with the information?
Answer: The Department of Health and Senior Services maintains the Organ and Tissue Donor Registry information on a secure site. The Department may periodically send out information to registry participants as it relates to organ and tissue donation or the registry itself. Therefore, a correct email address is encouraged so that you receive timely notification of any updates. The Department also uses the data to produce aggregate reports – NO personal information is ever published. At the time of your death, an authorized healthcare professional will search the registry for your donor status.

Does anyone else use my information?
Answer: The Department of Health and Senior Services, by law, shares you information with organ and tissue recovery organizations. Your information is only shared to verify this information in case of a death of a registered donor. The Department monitors access by those agencies. In addition, the Department will not sell, rent or otherwise share your personal information for use by any other outside party.


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